A man from West Yorkshire who has a rare genetic conditon that affects the appearance of his face has revealed the inspiring story of how he came to celebrate his disability. Jono Lancaster, 38, was born with Treacher Collins Syndrome, a condition caused by a mutation on a specific gene which prevents the bones and tissues in a persons face from properly developing.The condition is congenital, meaning that it is present at birth, and affects between 1 in 10,000 and 1 in 50,000 individuals in the general population, according to the National Organisation for Rare Disorders.
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