A young couple solidified their daughter's ashes into parting stones after losing her to a rare genetic disorder in April last year.Kaylee and Jake Massey, from , had their life flipped upside down when their daughter Poppy was diagnosed with Tubulin Folding Cofactor - or TBCD - a severe genetic neurological condition, at just nine months old.The parents were unaware that Poppy had a rare illness until she was four months old when they noticed her vision wasn't forming properly.
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